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Browsing Tag: cerebral palsy

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See It

Last week, Donald Trump hosted the U.S 2018 Winter Olympic and Paralympic team at the White House. He acknowledged their hard work and great accomplishments. He gave specific praise to the Paralympians and referred to their athletic performances as “inspiring.” He almost had it. He almost pulled it off. And then he said it…“its a little too tough to watch too much” of the Paralympics. Oh man. In the interest of being fair, Trump’s team has said the comment was referencing his busy schedule. ...
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Cerebral Palsy

The Perfect School

A friend of mine is in the midst of checking out special education preschools for her little boy. She went to visit one the other day and described to me how kind of taken aback she was when first stepping in the building. She was overwhelmed with what she saw and had a hard time processing all of it. I remember that feeling well. For the first year of Amichai’s life, I juggled my own work schedule around Amichai’s therapy (PT and OT) schedule. When Amichai was about eight or nine months ...
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Tricks of the Trade

Amichai has high muscle tone that runs down his right side – but most of it is concentrated in his hand. His thumb tends to close inward into his palm and his hand is sometimes fisted even in a resting state. What makes this even more challenging is that the muscle tone increases as Amichai attempts any activity with his right hand. So, when Amichai wants to open his hand to hold an object, he must overcome the tone firing back at him from all fronts. This makes it difficult to get a grip. ...
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Cerebral Palsy

Ignore the Noise

We went to the park today. It is a simple and endless joy for me to watch Amichai run around. As with most kids, the playground seems to be a place to foster imagination and freedom for Amichai. He’s always playing out some superhero scene in his head as he races around the park, one arm extended, yelling – to the rescue! The playground though can also be a place of challenge for Amichai. Ladders, swings, climbing ropes – Amichai is up for anything but he does need some assistance at times. ...
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Cerebral Palsy

What is CP anyway?

My son’s birthday is in July – July 31 to be exact. Last summer in a count down to the big day, I did my own 30 for 30 with Amichai (that’s my boy – pronounced Ah-me-chayi). Each day, for 30 days, I posted videos or pictures highlighting everything Amichai CAN do. The overwhelming response I got – in addition to the all the positivity and daily comments about how fabulously cute this kid is – was, wait Amichai has CP? Just a few days ago, a very good family friend – a friend who knows the ...
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